
Notes from
Connie, Spring 2013
CURE OM
I am
putting together a new book – The Eyes Have It: Ocular Melanoma. It
will be available by summer.
A fund raiser for an organization called CURE
OM.
I say putting together a book, rather than
writing a new book because I have invited people who have this
disease to join me in writing their stories. Each story is a chapter
of the book.
Many of the authors are noticing that writing
is healing. Some of them plan to expand their stories into a book of
their own.
The reason that I decided to organize this
project is that I wanted to do something to raise money for eye
cancer research.
Ocular
Melanoma is an orphan disease; only seven people in a million get
OM. For that reason there is a lack of money for research and
without research there will not be a cure. There is a fifty percent
mortality rate for OM patients. The disease is called “the beast”
for a reason.
You may
know, Dr. Oliver Sacks, the author of The Mind’s Eye and
Resurrection. Dr. Sacks also has OM.
The Eyes Have It: Ocular Melanoma is filled
with inspiring stories of courage and strength that will appeal to
everyone who struggles with life.
Stay tuned for this new project.
Books by Connie Robillard and Marcel Duclos are
available on
Amazon.com
Namaste’
Connie